9 Nov 2010 - Memorial and Tributes

Lynne's memorial and celebration of her life is scheduled for 7:00 pm this evening. I hope to see you there.

Sun Valley Church of Christ
1015 N Recker Rd
Gilbert, AZ 85234
Google Map

In lieu of flowers, Lynne and the family request donations to:
Barrow Neurological Institute
http://www.supportbarrow.org/Memorials_And_Tributes/190721

Regards,
Darryl

6 Nov 2010

Lynne won her battle against the Glioblastoma Multiforme at 2:05 pm this afternoon. At noon, her breathing became extremely labored and the oxygen saturation dropped to 55%, so we were sure that she was within just a few minutes. But Lynne is a fighter - a fighter to the bitter end.


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5 Nov 2010

I decided to spent the night at the hospice house tonight. As the signs of Lynne's impending passing increase, I am reluctant or incapable of resting. The children and I were able to spend some quality time with Lynne this afternoon. I believe she heard our words because she provides some simple acknowledgements. I did notice that she is struggling to focus her vision to those that are speaking but I am consoled that she acknowledges in other ways.

Today, I made my way to a local funeral home to plan for Lynne's final desires. Lynne wants to donate her body for study and research, especially her brain to further the body of knowledge for combating Glioblastoma Multiforme. She mentioned in the past her desire to contribute to the education of future doctors and possibly to extend the life of someone else. Her caring spirit continues to amaze me. I appreciate her courage and hope to build enough courage myself to make a similar decision.

As I prepare to retire for the evening, I pass along a simple reminder - hug the ones you care about and tell them you love them. May God bless you all.

Regards,
Darryl


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3 Nov 2010

Over the last two days, Lynne has enjoyed some additional energy. Yesterday, Diana lit up Lynne's eyes at the suggestion of a carmel frappe from McDonalds - one of Lynne's favorite indulgences. At one point, Diana tried to remove the cup from Lynne's hand to warm the hands a bit but Lynne gave her the "stink eye." In other word, "Get your hands off my frappé."

The hospice staff moved Lynne outside for a bit this morning to enjoy a little fresh air and the warm sun. She enjoyed the cool air and the sound of the humming birds at a feeder nearby.

She is enjoying the visits from family and the many friends she has made over the years. She is especially attuned to the voices and seems to recognize many by voice before sight. Despite her condition, she has not lost her caring ways. Each hug is accompanied but the gentle pats on the back. On Monday, I was outside her room reading some cards sent to her. Some of the cards elicited some tears and she heard me, calling me into the room she wrapped her left arm around my back and began her comforting patting. Even in her condition, she musters the strength to console and comfort others.

Regards,
Darryl

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31 Oct 2010

Except for brief moments of consciousness, Lynne has been sleeping since Friday evening. She is not eating or drinking. All medications are suspended except for one to control seizures, one to prevent nausea, and one to manage pain. She is also not receiving anything intravenously. I am thankful that Lynne and I discussed this a couple of years ago. Based on our conversations, I am comforted knowing that decisions I make are those she would make.

If you do not having a living will, do your family a favor and get one created. Lynne and I created them a while back and now I understand the importance of that simple document. Don't think that it can't or won't happen to you because none of us are smart enough or in enough control to know that for sure.

Lynne is resting peacefully. The hospice nurses are very attentive to her needs and providing very good care.

Regards,
Darryl


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30 Oct 2010

Lynne returned to the ER yesterday afternoon following a precipitous decline in her condition. I arrived home from Chicago on an early flight, not yet knowing the news. I received a hearty hug from her and that loving gaze I am very familiar seeing. Not long after, she entered a deep sleep that continues as of this posting. I decided to move her to Banner Gardens Hospice House, where she moved last evening. I believe we are in the last days of Lynne's wonderful life. She has touched the lives of many people and for that I am very grateful.


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22 Oct 2010 Update

The day we always hoped would be tomorrow came today. Lynne's MRI shows extensive tumor enhancement. No conventional treatments remain, so we move toward keeping Lynne comfortable and ensuring that each day is filled with as much peace and joy as possible. Lynne and I have shared many discussions throughout this journey to prepare ourselves for this day. The discussions help to ease this transition but only slightly. Please pray for an inner peace for Lynne and comfort and strength for her family and others that love and care for her.

Regards,
Darryl


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22 Oct 2010

Lynne and I met with the oncologist on Monday and received the recommendation to await another round of lab results before making any decisions about a course of action to address the low platelets. He reassured us that the chemo affects nearly everyone in a similar fashion. Lynne's latest blood results from yesterday indicate stability and slight improvement.

On Wednesday evening, Lynne experienced seizures with enough significance to earn a call to 911. Lynne was taken to a local hospital by ambulance. The initial CT scan showed no abnormalities and blood test results were stable. Lynne was admitted for further testing. Lynne had an MRI and we are awaiting results. There is some question about the quality of the MRI due to Lynne's anxiety with the MRI machine and the lack of appropriate medication to calm her nerves. If the quality is not good enough for a reading, another MRI may be conducted.

The doctors increased her steroid, which seems to have eliminated further seizures and is improving her speech. My hope is that edema is to blame rather than tumor enhancement as we are running out of options to address tumor growth. During the process of admitting Lynne to the hospital, Lynne experience a seizure in her left arm. That is a brand new symptom. This could indicate that the tumor is spreading to the right hemisphere or simply a factor of edema. Only the results of the MRI will shed enough light to understand the cause. My prayer is for edema as that can be controlled easily compared to tumor enhancement. Please join me in that prayer.

May God bless each of you.

Darryl


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16 Oct 2010

Over the last three weeks, two of Lynne's blood levels are trending to critical levels. Her white count is low, so we are taking precautions by avoiding crowds. Even more critical is her platelet level. Three years ago the platelet level reached levels where doctors were concerned about hemorrhaging, necessitating blood and platelet transfusions. We will meet with the oncologist on Monday to discuss further. Her next chemotherapy treatment was set for Monday as well but I suspect she will not have that treatment to prevent further degradation of the platelet level. She is more lethargic than normal, which affects her speech and ability to ambulate. Lynne is concerned and would appreciate your prayers.

Regard,
Darryl


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7 Oct 2010

David M. Bailey recently lost his battle against brain cancer but left a legacy in his music. The following link opens an American Brain Tumor Association page that highlights his story and one of his songs “Share Hope.” I hope you enjoy reading and listening as much as I did.

http://www.abta.org/items_of_interest/In_Loving_Memory:_David_M._Bailey_1966-2010/421-2

Regards,
Darryl

11 Sep 2010

Joyce, our friend from Connecticut, was able to make a trip for a 10-day visit at our home. Her stay was a blessing and a huge help. Besides enjoying her presence, Jessica and I are thankful for the extra set of hands. It's always fun listening to all of the laughs that Joyce and Lynne share when they are together. Netflix will enjoy a new customer, as Lynne got Joyce hooked on McLeod's Daughters, an Australian television series that aired from 2001 to 2009. Joyce has a bit of catching up to do as Lynne was in the middle of year three. Joyce flies back home this morning.




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9 Sep 2010

We had to make a run to urgent care this afternoon. When Lynne was getting ready this morning, she stood up and we heard a pop in her foot or ankle. After a few moments, she did not appear to be in any pain so we applied ice for most of the day. When the physical therapist arrived this afternoon, he recommended an x-ray as a precautionary measure. Luckily, no serious damage occurred, but she has a sprain that we will treat.

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7 Sep 2010

Lynne and I celebrate 31 years of marriage today. We had a fun day reminiscing about our life together. I treated her to a Swiss steak dinner with mashed potatoes. She requested a date to local Mexican restaurant, but we will do that on Friday, as she has several therapy treatments today.

She did pause at one point in the day and wanted to propose. Of course, I said "yes."



Regards,
Darryl

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3 Sep 2010

Lynne is resuming her chemotherapy treatments today following her brain surgery on 14 Jul 2010. The chemotherapy agent is changing to BCNU (bis-chloronitrosourea). Lynne has been feeling a little lethargic for the last several days so I called the doctor yesterday to order some blood work to see if any was amiss and to ensure that her body was ready for this dose of chemotherapy. The results indicate her blood levels are in good shape.

Lynne has not had any of her regular labs since before her last surgery. Lynne and one of the lab managers have become quite close over the last three years, since Lynne has blood drawn every week or so. When we arrived, I saw some tears flow as she was concerned about what had happened to Lynne because we had not been in the lab for nearly three months. Lynne touches lives no matter where her journey takes her. Her home nurse said yesterday "to know Lynne is to love Lynne" and that after only knowing Lynne for three weeks.

Joyce, our friend from Connecticut, arrived Wednesday just in time for Jessica's departure to Las Vegas for a little R&R and a birthday celebration. It's always enjoyable to see what a good time that Lynne and Joyce have while together. I also appreciate the help more than words can express.

My 25 years as a Motorola employee is nearing it's end. Nokia-Siemens Networks announced the purchase of the Motorola Networks business in July. The regulatory approvals are underway. I expect the acquisition to prove beneficial for both companies. I am already busy trying to understand what the acquisition means in terms of the information systems. No small task given the size of the corporations. Such events always provide the opportunity to learn new skills and acquire knowledge. I enjoy learning, so I look forward to the challenge.

Last Sunday, the seven year old Samsung DLP made an awful noise and switched from a high-def color television to a high-def black and white. Jessica wondered aloud how deprived her parents must have been when black and white was the rage. Unfortunately, the TV also presented a small sync problem that I was concerned could possibly induce seizures for Lynne. (I can justify about anything that I really want.) I took a trip to Best Buy the following day and looked at the Samsung 3D systems. Since they did not provide drool cups with the purchase, I chose to forego the 3D option for now and ended up down-sizing to a 58" plasma. Since all of the new equipment supports HDMI interfaces, I had to upgrade the audio/visual receiver in the process. I also upgraded my Logitech Harmony remote to the 1100 model, which resembles a gaming console with a color touch screen to control the features for each device in the system. It's great being geek. Lynne, thanks for the 31-years anniversary present.

I hope you all have a wonderful weekend.
Darryl


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28 Aug 2010

Lynne continues with a busy schedule as she recovers from the aggressive brain surgery six weeks ago. The recovery is slow but progress is being made. The physical and occupational therapy is becoming more strenuous so she is very sore after the sessions. She was scheduled for an occupational therapy session today but I had to cancel because she could barely get her eyes open when I tried to awaken her. She did manage to get up for lunch but wanted to rest about two hours later and she is still sleeping - four hours so far.

Our air conditioning went out Tuesday evening. I became aware of the problem just shortly after a call from a solicitor offering service for the same. I told them I had someone who takes care of the systems and hung up. Not ten minutes later Jessica walks into the front room and said "why is it so hot in here?" I told her I guess it's time to call that someone who takes care of the systems. Luckily, the house has two units so we slept in the guest room.

Kirk, from Croffoot Heating and Air Conditioning, called at 6:30 the next morning stating he was on his way to take a look at the malfunctioning unit. After a brief description of the situation, he believed the motor starter capacitor was bad. He opened the unit and discovered a bad ________; you guessed it - motor starter capacitor. In nothing flat, we regained a reprieve from the Arizona summer.

Lynne and I met with her oncologist this week. The office is seeking approval from the insurance company, so we expect a call within a couple of business days to schedule an appointment for Lynne's continued chemotherapy. The BCNU is administered intravenously in two separate doses, once for two consecutive days then repeated every six weeks. According to my research, most people tolerate BCNU fairly well with minimal nausea and other side-effects. I am hoping that Lynne tolerates the BCNU treatment with minimal side-effects, as she demonstrated high sensitively to Temodar, a previous chemotherapy drug. Existing therapies for glioblastoma multiform (GBM) are palliative so we will continue regular MRI scans to monitor the state of the cancer.

As always, Lynne and I appreciate your prayers, thoughts, and cards. We also appreciate those who have shared meals with us and supplied Lynne with the McDonald's Carmel Fraps and other treats over the last few weeks.

Regards,
Darryl

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20 Aug 2010

Lynne's recovery from her surgery is moving along steadily. She had nine appointments this week with doctors, therapists, and home nurse visits. She is definitely ready for a nap after the therapy appointments. Lynne has moments of clear speech but still struggles to find the words to express her thoughts.

Yesterday, without warning, the batteries for the Logitech universal entertainment system remote died so I had to make an emergency run for AAA batteries. This is only an emergency when one is stuck on the couch most of the day. As I made my way to the garage, Lynne said "can I ride along?" She had just finished a physical therapy session and was ready so I helped her to the car for a few minutes out of the house. Once into the car, she said "you know I have a plan." She didn't have to say any more, I knew she wanted a McDonald's Carmel Frappe, you know the one that is fantastilicious.

Lynne's sister was able to sit with Lynne for a few hours on Wednesday. Jessica went to the mall for a little breather and I got a little uninterrupted work time. We are also looking forward to a visit from our friend in Connecticut. Lynne will get some time to talk about things other than cancer, doctors, and treatments.

We did meet with neuro-oncologist this week to discuss chemotherapy options. He recommends switching to bis-chloranitratesurea (BCNU) due to Lynne's sensitivity to Temodar. Lynne almost lost her life when taking Temodar three years ago due to platelet counts that plunged to fatal levels. Temodar is a one of the gold-standard treatments, especially following the initial diagnosis. BCNU is one of the original treatments for GBM approved by the FDA in 1977. BCNU is the same agent that is in the Gliadel wafers implanted during surgery. She has an appointment with her oncologist next week to get the chemotherapy treatments started again.

7 Aug 2010

We have had a pretty uneventful week at home since Lynne was discharged from the rehab facility. Lynne has moments where she is able to speak clearly but most of time she finds difficulty piecing together her thoughts into coherent speech. Lynne is sleeping well at night, which is a relief. When I get a good night's sleep, I have much more energy throughout the day. Jessica is also contributing most of her time to ensure that Lynne has a 24 hour watch.

I have been coordinating doctor appointments and her continued rehabilitation therapy care this week. The rehab doctor and I had agreed on home therapy but the discharging physician prescribed out-patient therapy. Her primary care physician supposedly sent an order to a local home therapy company but when I called yesterday, they claimed no knowledge of receipt. We are meeting with the primary care physician on Monday so we will get things rolling. Lynne did mention to me at breakfast that she is ready to get working on the rehabilitation. I am also coordinating the resumption of her chemotherapy treatments. The neuro-oncologist is recommending a modification in her treatment, so I am greasing the communication skids to ensure that her oncologist receives the recommendation and to schedule her first appointment.

Lynne and I met with the neurosurgeon on Thursday. He is pleased with the healing of the surgical site. Given the significant deficiencies resulting from this surgery I asked the surgeon about the likelihood of any future surgical procedures. He confirmed my suspicion. The risk associated with each subsequent surgery increases significantly compared to the previous procedure. Any future procedures must be considered with great care. At this point, we are looking to the chemotherapy as the primary treatment.

Susie and Kristel stopped by on Wednesday and treated Lynne with lunch from Taco Bell. Tom and Charlotte treated us to takeout from Pei Wei last evening. That put the infamous Lynne grin out Lynne's face. We enjoyed both the meal and the visit. Lynne continues to receive several cards each day, which she appreciates very much.

As Lynne's condition stabilizes, I will be posting updates less frequently but will update promptly with any significant news.

Regards,
Darryl


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1 Aug 2010

After a couple of days of searching I located a potential vehicle that will suit Lynne's need for one that is lower to the ground so she can get in and out safely. Given the number of doctor appointments she is scheduled for in the next few weeks, moving quickly is important.

I located a Cadillac CTS-V on a local dealer website on Friday. On Saturday, the vehicle was no longer posted, so I started searching for other suitable alternatives. On Sunday, much to my surprise and delight, the vehicle once again appeared on the website so I showed up at opening time for a test drive. Come to find out, a co-worker of my brother was looking at the same vehicle, luckily I beat him to the punch. On my way out the door, Lynne managed to say "Black." She loves black vehicles with chrome wheels, so I assured her I had her back on this one.

The deal was a good one. I traded in both the 2005 Denali and the 2000 Yukon. The Yukon was driven a whopping 1,200 miles last year. So I am thankful that the deal worked and receive the benefit of not paying insurance and registration.

So back to the CTS-V... the V includes the Corvette LS6 engine and all of the performance tweeks and options one would expect from Cadillac. While I made sure that the vehicle met Lynne's needs, the 405HP and 0-60 in 4.5 seconds is just for me. That is what makes a good marriage right... compromise.

Regards,
Darryl

31 Jul 2010

Lynne is finally back home. I arrived at the hospital this morning at 8 in time to spend the last few minutes of her breakfast with her. After breakfast, we met with the therapist to practice a bit with navigating the entry way to our home and with transferring her to Jessica's car and out again. I got my training and practice to give Lynne her blood thinner injection. I learned that Jessica wants to give the injection, so my whining and plea for a reprieve from that duty paid off.

At Costco yesterday, they had a display setup for dipped apples with a variety of different coatings. I had to chuckle because about 7 or 8 ladies stood before the large glass counter with the "look". You know the one that appears when chocolate is in sight. Just two isles over another sample table for sugar-free chocolate was present but accompanied by the loneliest looking vendor I have ever seen at a Costco sampling table. I opted for the apples. Lynne called me later in the afternoon and requested delivery of the cherry dipped, so we had a little celebration this morning.








We were on hospital time waiting for discharge papers all morning and into the early afternoon hours. When lunchtime arrived, a nurse stuck her head into the room asking Lynne if she wanted lunch. She replied quickly, "No, Darryl is taking me out." I convinced her to eat something just to hold her over until we did get home.

Regards,
Darryl

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30 Jul 2010

Lynne is starting to show some excitement to go home tomorrow. Jessica and I worked with the therapists today to refresh our memories and show us new techniques for assisting Lynne at home. They even observed as I gave Lynne a shower. That part I passed with honors.

I may be shopping for a new vehicle as Lynne was unable to get into the Denali due to the height so we will use Jessica's car tomorrow. I had a surprise phone call from the nurse this afternoon stating that tomorrow they will teach me to inject her blood thinner. I propose to have Jessica stand behind me so she can catch me when I pass out.

During the speech therapy session, the speech therapist showed Lynne a variety of pictures to test and remind her recall about the object names. One picture was of a girl in an dress that resembled something from the "Sound of Music." The expected answer was "girl" but Lynne replied "Betty Crocker." The girl's dress certainly looked like an apron was adorned. We all chuckled, Lynne included, and I assured the therapist that given Lynne's love of cooking the answer was quite appropriate.

At lunch, I noticed some of the residents were not present and noticed several new faces. I attended nearly every lunch and dinner so my noticing the changing faces is not surprise but I assure you that even the unfamiliar could pick out the new residents because each of them ordered the vegetable lasagna. The experienced residents only make that mistake once.

Gigi, our cat, is definitely more attached to Lynne than the rest of the family and Gigi's behavior over the last two plus weeks provides solid evidence of that fact. This morning Gigi was warming up to me and I took a picture and immediately knew what she was really thinking.




Regards,
Darryl

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29 Jul 2010

I noticed a step improvement during Lynne's speech therapy session today. She easily identified pictures of objects from groups upon hearing the word. She also easily repeated words when spoken by the therapist. She is struggling a bit following commands.

The afternoon storm synonymous with the Arizona Monsoon rolled in a little earlier than those earlier in the week. The sky darkened at 3 pm accompanied by stiff winds. No rain fell at my location but appears to have managed some at our home in Queen Creek. So little rain falls in Arizona that we tend to get a little giddy with excitement at the possibility.

Jessica and I spotted a photo opportunity earlier in the week. The photograph is impressive so you can imagine what the scene looked like in person.





Regards,
Darryl

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28 Jul 2010

Lynne had an extra hour of physical therapy added today for a total of six hours. I don't every remember her wanting to get to bed so desperately to get some rest. I hope she isn't get the surprise bug that started with Joshua on Sunday, me on Monday, and Jessica on Tuesday. We were all together over the weekend. That is the last thing she needs right now.

I did get to meet with a speech therapist for the first time today at this facility. She is encouraged by Lynne's progress. The therapist believes Lynne understands most of what she hears and recognizes objects that she sees but the connections between the brain and nerves are struggling to control the mouth. (I actually have observed this in many people but they do not have the excuse that Lynne has.) I am encouraged with the progress and understand that the recovery may be somewhat lengthy. The therapist mentioned that her mother was also diagnosed with Glioblastoma Multiforme (GBM). Her mother passed away from a combination of issues but did do very well for a time.

The therapists scheduled a two hour rehab refresher course for amateurs that Jessica and me attend on Friday. We do pretty well from our on-the-job training over the last three years but I am always interested to see and hear the tips that the experts have up their sleeves. The whole process is actually quite fascinating. I am impressed by the human body's ability to adjust to challenges such as what Lynne is experiencing.

Lynne is still on track for a Saturday release. She hasn't said yet, but I can only imagine how she looks forward to the comforts of home and familiar surroundings. I know that our pets, Hendrick, Simba, and Gigi, will be glad to have Lynne home. They have not been the slightest bit pleased with Lynne's absence as you can imagine from this photograph of Hendrick.




Regards,
Darryl

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27 Jul 2010

I am glad to be feeling much better today so I can visit Lynne again. Today, I brought Lynne one of her favorite treats, a McDonald's Carmel Frappe. Luckily, the center has a refrigerator as she still had about two hours of therapy remaining after I arrived. After a couple of slurps from the straw, I asked her if it was good. She said, "fantastilicious." I don't think that is a word but I was pretty happy to hear five syllables uttered to perfection. I think that is just fantastilicious.

Lynne walked 250 feet today with light contact for safety purposes then she used her feet to move her wheelchair 150 feet. I spoke with the rehabilitation doctor and he is targeting a Saturday release date. After release, she will have home therapy and when she improves a bit more probably some out-patient therapy.

She did have a total of five hours of therapy today. She took a very short nap this afternoon, so she should sleep pretty good tonight.

I bring her the cards you send each day. Each usually elicits an "ahh...." from her. We do appreciate the cards and comments you leave on the blog and Facebook.

Regards,
Darryl


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26 Jul 2010

I visited Lynne yesterday. The fall she took Saturday evening did not leave any bruising but she is still pretty sore. Billy and Heather shared lunch with us yesterday afternoon. The ribs were yummy and the macaroni and cheese filled a week-long craving for me. The lemon bars - well it goes without saying. I will not be visiting the hospital today because I woke up at 2am with a bug of some sort that is making me feel sub par and I don't want to risk spreading it around. After 8 hours or so, I am beginning to feel a little better so I hope tomorrow is much better. Joshua and Jessica are picking up the slack for me. I appreciate both of my children and the maturity they show when caring for an ill parent.

We continue to appreciate the cards, thoughts, and prayers. I am limiting Lynne's visits at this time because a lot of activity is overwhelming to her. This surgery has limited Lynne to focusing on one task or thought at a time. Her brain has to work much harder on tasks that the rest of us do without even giving a second thought.

Lynne has not lost her sense of humor nor her beautiful smile. Humor is a big part of daily routine. I am thankful because the humor diverts our thoughts even if only for a moment.

Regards,
Darryl

24 Jul 2010

Lynne tried to stand up unattended and took a fall this evening. She hit her left cheek and ear. Following a preliminary examination, she appears to be OK but a CT scan was completed to determine if any internal injury occurred. The CT scan showed only changes associated with the brain surgery. Her cheek is swollen, so I expect a noticeable reminder tomorrow to always ask for assistance.

Regards,
Darryl


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24 Jul 2010

The therapists are pleased with Lynne's progress in the occupational and physical areas. Enough so that Lynne might be released early next week instead of the original three weeks that was planned. Lynne's speech has not shown much improvement. After release from the acute rehabilitation, she will work with an out-patient center for all three therapy areas.

I made Lynne lunch and brought it up for her today. She likes my green chile cheese enchiladas. I also made spanish rice using some enhancements suggested by our friend Maxine. After eating hospital food for a couple of weeks, I suddenly turned into master chef in Lynne's eyes. She enjoyed the meal and I enjoyed making it for her. She was a little disturbed that I moved the cheesecake, delivered by the hospital, away for her to eat lunch first. Terry, Leslie, Mack, and Jessica also ate the meal with us in the family room of the rehabilitation center.

She is sleeping soundly at the moment. Her days are filled with breakfast, therapy, and lunch beginning at 7am and ending at 1 pm. For the last two days, the therapists added one additional session following lunch. Needless to say, she deserves a long nap each afternoon. Sometimes I wish I could sleep when the sun is out but that is a rare occurrence for me. Luckily, I sleep like a log at night.

Regards,
Darryl


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21 Jul 2010

Lynne moved to the rehabilitation facility yesterday afternoon. She was all smiles and didn't want any grass growing under her feet. Once the order was given, we packed the room and she was onto the ambulance for transport within ten minutes. The Rhodes rehabilitation center moved to a new location since Lynne's last visit but there are still some familiar faces.

Lynne faces a massive task to recover some self-sufficiency and to restore her ability to communicate effectively. I believe the size of the mountain became more clearly visible for both of us today. I sense she is overwhelmed with what she knows lies ahead. At this time, we do not know an estimated length of stay, we will know more after a few more days of therapy. Today, she completed three hours of therapy. One hour each of speech, occupational, and physical. All sessions were back-to-back then lunch, so she was exhausted and ready for nap.

This evening is pretty emotional for Lynne. She is unable to express the source and I am withholding the tendency to fill in the blanks for her but given the turmoil of the last week, I suspect a combination of many thoughts swirl in her mind. I pray that inner peace prevails, while she tackles the mountain one step at a time.

We do appreciate your continued prayers, thoughts, and comments.

Regards,
Darryl

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20 Jul 2010

Lynne had another good night. She awoke this morning early and wanted to get cleaned up a bit. She enjoyed a cinnamon roll, banana, and yogurt for breakfast. The cinnamon roll was the first item selected from the breakfast menu. She has not lost her affinity for sweets. Two slices of cheesecake are also her first request at lunch and dinner. I think asking for two slices is out of the box thinking on the part of the hospital staff because only one slice shows up.

The surgeon visited this morning and stated that much of the enhancement was de-bulked during surgery. Due to the location of the surgery, he is not hopeful for much improvement in the right arm and leg deficit but he is hopeful for improved speech. She did manage to say "get me outta here" this morning. She is ready to move to rehab and get to work. She is quite the trooper as she had demonstrated over and over. Her nurse Ashley located a wheelchair, so I was able to get her out of the room for a while to see the views from the 6th floor. She is not fond of enclosed spaces, so the brief excursion lifted her spirits. Didn't take too long before the sandman returned for a visit.

Regards,
Darryl

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19 Jul 2010

I don't have much in the way of news today, which is probably good news in it's own way. Lynne is holding steady. She has not moved to the rehab facility yet but progress is being made in that direction. Maybe tomorrow.

Regards,
Darryl

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18 Jul 2010

Lynne's sister stayed with Lynne last night and reported she had a very good night. I arrived at about 9 this morning. The emotions and frustration still run high for her due to the deficiencies in her right arm and leg and the inability to express her thoughts and concerns. She did manage to say, "you should throw me out." I assured her that wish would not come true because of the promise I made to her many years ago. For those that know Lynne well, you understand a comment like that is very out of character. It displays the level of frustration bottled up inside. She is having some seizures in her right arm that causes discomfort, so we will mention that to the doctor the next time he checks in.

Value every day that you have with those you love and care about. The rest is all fluff.

Regards,
Darryl


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17 Jul 2010

Lynne had another good night. She is gaining some flexibility in her right leg. The staff is starting to discuss rehabilitation facilities, so I expect she be transferring to a facility within the next few days with Monday as the highest probability at the moment. She is scheduled for physical and speech therapy later in the day. She is still frustrated and emotional due to the inability to express her thoughts effectively. She has times when she speaks full sentences, so I suspect much of the problem is due to edema, which will subside with time.

Thank you all for your comments, thoughts, and prayers. We ask that you continue.

Regards,
Darryl


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16 Jul 2010

Lynne had a good night. She is still awaiting an MRI due to computer issues that generated a backlog for patients scheduled for routine scans. Lynne is able to communicate much better starting last evening, especially when the pain medication effects subside. Lynne is expecting a room change sometime during the day. As is always the case, the nurses say caring for Lynne is a pleasure due to her kind spirit. Lynne rarely fails to say "thank you" for even the simplest of requests.

Regards,
Darryl

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15 Jul 2010

An ultrasound revealed that Lynne developed blood clots in her right leg following her brain surgery yesterday. The doctors are reluctant to administer blood thinners opting instead for an inferior vena cava (IVC) filter. The filter prevents the clots from moving to her heart, lungs, or brain. The procedure just ended and Carmen, her nurse for tonight, just left to return Lynne to her room. She is still expecting an MRI this evening as well. Hospitals are no good for resting. I just made made my makeshift bed and looking for at least a little rest.

Regards,
Darryl

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Location:W Earll Dr,Phoenix,United States

15 Jul 2010

Lynne was sitting in a chair when I arrived this morning. She is having extreme difficulty verbalizing her thoughts and struggling to assemble full sentences. Imagine the frustration that causes for her. I am reassuring her that this will take a little time. The physical, occupational, and speech therapists will begin working with her today. She is also scheduled for a follow-up MRI this evening.

Regards,
Darryl

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14 Jul 2010

Lynne was still under sedation when I was allowed to see her. She looks great and able to respond but had to work hard due to the sedation so we decided to leave for the evening to allow her some time to rest.

Regards,
Darryl

14 Jul 2010

Lynne is out of surgery and in recovery. She is being moved to ICU shortly. I can't wait to see her. The surgery lasted much longer than planned but the surgeons assured me that was not due to complications. The assisting resident did state that Lynne moved her right arm and leg, which is very good news at this point. Thank you Father.

I plan to post one additional update later today.

Regards,
Darryl

14 Jul 2010

Lynne was taken to surgery on schedule this morning. The surgeon shared the results of the MRI taken on Monday. The tumor has invaded the motor strip, which increases the risk associated with the surgical outcome. Lynne was offered the option of an aggressive or non-aggressive surgery. The risk of the aggressive option is paralysis on her right side. The benefit is longer life expectation. The reverse is true for the non-aggressive option. Lynne and I prefer and agreed to pursue the aggressive option. With the aggressive option, the need for rehabilitation is a near certainty. We will know more after the surgery and much more within the next couple of days.

We appreciate your continued thoughts and prayers.

Regards,
Darryl

7 Jul 2010

The Barrow Neurological Institute tumor board recommends another brain surgery followed by additional chemotherapy. Lynne is anxious but prepared to undergo her third brain surgery, the fourth when including the Gamma Knife treatment. She is scheduled for pre-operative work on 12 Jul 2010. The pre-operative work includes a functional MRI, blood work, and an appointment with the surgeon. The functional MRI maps brain function to provide a guide to the team during the surgery. On 14 Jul 2010, she starts admission and pre-operative procedures at 6:30 with the surgery scheduled for 8:30 in the morning.

As always, we appreciate your thoughts and prayers.

Regards,
Darryl

29 Jun 2010

Lynne, Jessica, and I met with the neurooncologist at the Barrow Neurological Institute. We discovered that Lynne does not qualify for the clinical trial mentioned last week because this is the fourth recurrence for Lynne. The protocol for the trial dictates that the treatment only be applied at the first recurrence. The doctor outlined several other treatment possibilities but wants to review the images from all MRIs since her last surgery in September 2010 to evaluate the extent of the recurrence. I copied and mailed the disks today. The doctor will review and present his additional findings to the tumor board next week. We expect to hear something more in the middle of next week.

Thank you for your continued thoughts and prayers on our behalf.

Regards,
Darryl

22 Jun 2010

Lynne is scheduled to meet with the oncologist at the Barrow Neurological Institute next Tuesday, 29 Jun 2010. We will have additional details about the proposed clinical trial after that appointment.

Regards,
Darryl

16 Jun 2010

Lynne and I met with the neurosurgeon at Barrow Neurological Institute yesterday. The surgeon confirms that the MRI indicates recurrent tumor. The surgeon suggested a clinical trial. Based on the trial description, I presume the clinical trial is a treatment using Cotara. Lynne’s survival to date places her in a small group of only 5 to 10% that survives glioblastoma multiforme (GBM) for more than 3 years. As a result, a continued aggressive approach is recommended. The tumor enhancement is small but all standard treatments have been used. This recommendation goes before the tumor board on Friday to reach a collective consensus on the approach and to ensure that Lynne meets the stated criteria for the clinical trial.

 

Cotera is a radioactively-tagged antibody that is injected through two catheters into the tumor bed over a two-day period. The theory is that the tagged antibodies attach to the cancer cells to deliver the radiation, while avoiding healthy cells.

We will learn more on Monday, 21 Jun 2010. I will post an update to provide additional details as we receive them.

9 Jun 2010

We received the radiologist report from Lynne’s MRI on 2 Jun 2010, which indicates evidence of nodular enhancement and a thin rind of enhancement along the entire periphery of the tumor resection cavity. No evidence of midline shift is present indicating the cancer has not migrated to other parts of the brain.

The neurosurgeon and tumor board of the Barrow Neurological Institute also reviewed the report and images and confirm the recurrence of tumor. At this point, I believe the enhance is minor. Lynne and I will meet with the neurosurgeon next week to determine future steps.

Your continued prayers and thoughts on her behalf are appreciated.

Regards,

Darryl

24 Apr 2010

Lynne is doing very well and has been for the last few days. I don’t remember the last time she was up at 5:00 am but she was awake this morning and feeling pretty chipper. She made her way to the hobby room to make some cards. A couple of weeks ago, she was prescribed a new medication that did not agree with her and she spent a few miserable days. She is scheduled for her next chemotherapy treatment this next Wednesday.

17 Mar 2010

On 2 Mar 2010, Lynne underwent an MRI. The radiologist noted a subtle enhancement on the periphery of the tumor site. I forwarded the images and report to the Barrow Neurological Institute for review by the tumor board seeking recommendations. For now the tumor board recommends continued chemotherapy and another MRI review in three months.

Regards,
Darryl

Cancer Radiation Treatment

Rick Reilly wrote an article George vs. The Dragon that chronicles the radiation treatment of George Karl, the Denver Nuggets coach. Lynne underwent this treatment in 2007 for the brain cancer. This helps the rest of us appreciate the battle that cancer patients face each day.

Regards,

Darryl

6 Feb 2010

Lynne continues bi-weekly chemotherapy treatments. The side-effects are extreme fatigue, mouth blisters, headaches, and a laundry list of others. She also receives a Neulasta injection after each treatment to boost the white count levels. The Neulasta is effective but causes aching to the bones.

The doctor did commend her for continued positive attitude and gives much credit to her attitude and support system for the length of her survival. After many years in the business, he has seen those without those traits live much shorter lives. We are very thankful for those who encourage her regularly. According to the doctor, your encouragement contributes to her success in this fight.

The doctor stated that he added Lynne to his miracle list as most patients with glioblastoma live only 3 months without treatment and 9 to 15 months with optimal treatment. On February 1, 2010, Lynne celebrated three years of survival following the diagnosis and first brain surgery, which places her in a group of only 10% surviving up to five years.

She will have an MRI in March to determine the effectives of the treatments. As long as the treatments are effective, the doctor plans to continue the treatments.

Regards,
Darryl